About :: Our Charities

In part, this website is dedicated to my family, whom, like myself are passionate about local history around the Kenfig and surrounding areas and who have witnessed at first hand the debiltating and cruel effects of a little known medical condition known as PSP ( Progressive Supranuclear Palsy ) - an illness which claimed our dear dad's life in October 2002.

We aim to raise an awareness to PSP through this website project and hope this gives a little comfort to those who may be experiencing difficult times due to this distressing illness to both the patient and carer alike. I personally recall the countless times of working through the nights at home in learning ICT and specialist web design skills during a point in time when my dad was ill; continually having to witness the debilitating effects of PSP of which we as a family knew very little about until after my dad's passing.

We can now identify the symptoms of PSP with what my dad was experiencing; we felt so helpless ourselves in caring for our dad and fully appreciate and respect the pain and sufferring others with PSP and their families maybe going through. My own mum's ability, devotion and dedication to caring for my dad right up until his passing cannot go without mention - she truely is an angel. Additionally, a mention to my younger brother whom like myself, experienced a great pain in loosing a kind, loving and devoted father to PSP.

In addition to raising an awareness to PSP - this website aims to help and promote The Sandville Self Help Centre, Ton Kenfig, for the remarkable services to the community that it provides in caring for the seriously ill in a loving, relaxed and happy environment. We personally would like to thank Sister Gwyneth Poacher SRN MBE of the Sandville Self Help Centre for all the help and support both she and sandville volunteers provided ourselves as a family during and throughout my dad's illness with PSP.

A special thanks also to all doctors, specialist medical and all NHS staff at both North Cornelly Surgery and the Princess of Wales Hospital, Bridgend during and throughout my dads illness - we believe this may have been somewhat of a first case senario of PSP within the Bridgend County Borough, at least to our own knowledge at that.

Modern medical knowledge and experince in these specialist fields and the exemplary standards of care and attention to the treating of my dad were executed at all times by all associated with ourselves throughout my dads illness.

Without the specialist medical care and advances in modern medical sciences that have and continue to be developed within the 21st century, we must, without doubt thank everyone involved throughout these processes - PSP would have, only a matter of a few years ago been misdiagnosed with the patient possibly being committed to a psychiatric hospital instead of treating and learning about this neurological disorder.

Rob Bowen - Chair / Webmaster Kenfig.org Local Community Group